BEYOND EXPECTATIONS: A MOTHER'S JOURNEY WITH A CHILD WITH DOWN SYNDROME

Sri Wahyuni; Andini Januarti; Dara Siska Amelia; Maia Amelia  Fitar; Harpiza Apri Yunita; Nadia Viska Levindra; Endah  Mulyani; Siski Oktavia

doi:10.61397/jkpp.v3i1.345

Authors

Sri Wahyuni Universitas Negeri Padang
Andini Januarti Universitas Negeri Padang
Dara Siska Amelia Universitas Negeri Padang
Maia Amelia Fitar Universitas Negeri Padang
Harpiza Apri Yunita Universitas Negeri Padang
Nadia Viska Levindra Universitas Negeri Padang
Endah Mulyani Universitas Negeri Padang
Siski Oktavia Universitas Negeri Padang

DOI:

https://doi.org/10.61397/jkpp.v3i1.345

Keywords:

mother’s experience, children, Down syndrome

Abstract

This research aims to explore mothers' experiences in caring for children with Down syndrome by focusing on the challenges they face and the strategies used to overcome them. This research uses a qualitative phenomenological research type with an Interpretative Phenomenological Analysis (IPA) approach, with a focus on in-depth interviews involving two mothers who have Down syndrome children. The research results show that there are 4 ultimate themes from both subjects, namely (1) Child behavior, (2) Optimism, (3) Emotional turmoil, and (4) Social support. Social support from family and neighbors, and optimism play an important role in helping mothers to overcome the challenges faced in caring for children with Down syndrome. This research provides valuable insight into the importance of social support and optimism in helping individuals, especially mothers with children with Down syndrome, in facing the challenges of caring for children with Down syndrome.

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